Here, we are. We were just blessed with a four day weekend with Mark at home. Friday, we actually spent half the day in the hospital- and then came home – the day before graduation! AND the day our second daughter turned 17!! <3
I cannot express with words how good it was and how thankful we were to have him home for graduation- but I believe this picture of our Graduate with her daddy does:
Sunday, we asked for some time alone with just the six of us after church for the day. We needed that time desperately, and though I feel we need even more, our time is quickly running out.
Today, Memorial Day is a day we will spend with Mark home again – adding back in his dad, step-mom, mom, sister and nephew. I woke up this morning crying, thinking, “I really wish we could all be home together longer.” However, I will take what I can get and truly am thankful for the time we have.
It’s important to our youngest daughter today that we go down to the park and play basketball today so he can watch her. She misses hearing him yell from the stands at her games, and since he has to go back tomorrow, he won’t be there next weekend to do that. FaceTime is wonderful, but it is not quite the same.
I enjoyed cooking for Mark yesterday- a big ole breakfast, some pasta stuff at lunch and his request for Pot Roast last night. This morning, he has asked for Sausage Gravy over biscuits which we lean red how to make while living in Oklahoma. He has often said to me over the last few weeks, “I don’t think anyone else would have stuck with me all this time through all we have been through.” Our soon to be 22 years together have been spent in Columbus, Ohio. Pryor, Oklahoma. Canton, Ohio. Romeoville, Illinois. Firestone, Colorado.
So, this is the news we have for you and it isn’t exactly what we were hoping but as with everything Mark encounters, he has pointed out what the “good news is”.
Tomorrow morning, we need to go back to the hospital. He will begin a new 5 day regimen of chemo- a bit stronger than the last 7 day treatment as there were still cancer cells found in his last bone marrow biopsy. They told us that out of the space consisting of cells which is about 40% , 40% of that has leukemia in it. So, we need to get rid of it!
This could be a very long process. According to my notes, after this round, there could be a 3-4 week recovery period. There is a 40-50% chance according to doctors of this putting it in remission. Our hope, is of course, that is does and that we have a donor by that time so they can get him ready for transplant with one more round of the kick-butt chemo that will clear out every nook and cranny and get him the transplant. (That is when the 30 days in the hospital and then 100 more days living in Denver would take place.)
When I add all that up- it looks like we are looking at 5 months, with everything happening as we are hoping and praying it will. When you ask Mark, he will tell you, that the good news is we will just go right through this and get it done. Badah boom, Badah bing. Chemo, chemo, transplant, recover, home. Game over.
So, DONOR and REMISSION are our two big prayer requests still- and we thank you for joining us.